Australian Resources
Downloadable materials
Crysvita® Resources
XLH Resources
XLH Disease Mechanism
Symposium Highlights
Videos
Podcasts
Management of adult patients with XLH – A/Prof Peter Simm with Dr Penny Coates
Publications of interest
Publicly Available Websites
Publicly Available Websites
XLH information websites for healthcare professionals
1. XLHLink.asia (Healthcare professional website)
https://www.xlhlink.asia/hcp/
This website is developed and funded by Kyowa Kirin Asia Pacific Pte. Ltd.
1. The Australian Bone and Mineral Society (ANZBMS)
https://www.anzbms.org.au/
2. The Australasian Paediatric Endocrine Group (ANZSPED)
https://anzsped.org/ /
3. The Australian and New Zealand Society of Nephrology (ANZSN)
https://nephrology.edu.au/
XLH Information websites for patients
1. XLHLink.asia (Patient website)
https://www.xlhlink.com.au/patientstories/
This website is developed and funded by Kyowa Kirin Australia Pty. Ltd.
2. XLH Australia Incorporated
https://xlhaustralia.com/
3. Rare Voices Australia
https://rarevoices.org.au/
We are not affiliated, associated, authorised, endorsed by, or in any way officially connected with any other company, agency or government agency listed hereunder or otherwise.
1. Beck-Nielsen SS, et al. Eur J Endocrinol. 2009;160:491–7. 2. Endo I, et al. Endocr J. 2015;62:811–6. 3. Carpenter TO, et al. J Bone Miner Res. 2011;26:1381–8. 4. Haffner D, et al. Nat Rev Nephrol. 2019;15:435–55. 5. Rafaelsen S, et al. Eur J Endocrinol. 2016;174:125–36. 6. Rajah J, et al. Eur J Pediatr. 2011;170:1089–96. 7. Raimann A, et al. Wien Med Wochenschr. 2020;170:116–23. 8. Razzaque MS. Nat Rev Endocrinol. 2009;5:611–9. 9. Linglart A, et al. Endocr Connect. 2014;3:R13–30. 10. Beck-Nielsen SS, et al. Orphanet J Rare Dis. 2019;14:58. 11. CRYSVITA® (burosumab). Based on Singapore Package Insert. Kyowa Kirin Asia Pacific Pte Ltd; May 2021. 12. Portale AA, et al. Calcif Tissue Int. 2019;105:271–84. 13. Imel EA, et al. Lancet. 2019;393:2416–27. 14. Insogna KL, et al. J Bone Miner Res. 2019;34:2183–91. 15. Carpenter TO, et al. N Eng J Med. 2018;378:1987–98. 16. Insogna KL, et al. J Bone Miner Res. 2018;33:1383–93